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56The Union of Local Authorities of the Philippines (ULAP), with our continued advocacies for health and partnership with private and civil society organizations (CSOs), is in partnership with the the Philippines Soceity for Orphan Disorders, Inc., (PSOD), which has taken the initiative to be the central coordinating organization for the rare disease awareness week campaign in the country, bringing together different healthcare institutions, local government units, government agencies, civic organizations, media and other private and public institutions since 2011, to be united in creating awareness and support for Filipinos with rare disease.
Come February 28, 2015 the world will celebrate the 8th international Rare Disease Day with the theme “Living with Rare Disease: Day-by-day, hand-in-hand”. Over 80 countries participate in this occasion to raise awareness and to generate much needed support for those afflicted with rare disease (otherwise known as orphan disorder).
In 2010, the last week of February was declared as the “National Rare Disease Week” in the Philippines through Presidential Proclamation 1989. This year, on February 21-28, the Philippines will be celebrating the 6th National Rare Disease Week joining hands with the rest of the world in the celebration of the 8th Rare Disease Day with the same theme.
Click the following link to view the Philippine country site: http://www.rarediseaseday.org/country/ph/philippines